Hydrocephalus was a mystery to us. We never heard of it until May 2016 in an emergency room of all places. We had been going about our lives, and then this condition came along. And it came with a vengeance – confusion, unsteady gate, and memory loss. The most insidious of the symptoms was the memory loss. How did he get it? Why did he get it? What caused it?
The worst didn’t come until December 2017 when he had to be hospitalized for 3 weeks, followed by 3 months of 3 different therapies (speech, occupational, physical). Could you imagine not knowing things you used to know with all certainty, like what city you live in, the year, how to walk, what you did 5 minutes ago, or how to read or do basic math?
I couldn’t imagine, but I lived it with my husband, Bryan, when we learned he had this strange (to us at the time) condition called hydrocephalus – water on the brain. It’s a condition where the spinal fluid floods the brain. It stole a treasure trove of his precious memories. Some have come back. Some come and go. And some are lost forever.
I naturally forget some things as I get older. We all do that. Our brains hold our precious memories, which to me is like treasure. When I’m feeling down, I can recall moments like when I watched how much fun my son had playing with his little cousins in Chicago last September, which boosts my mood. When I’m missing someone I love dearly like my mom, I can pull from my treasure of memories and end up feeling close to her again. When I’m stressed, I can recall our time at the beach last summer when the waves and sand were tickling my butt….utter peace and joy.
My husband is doing so much better, but it’s a condition we are living with. He often impresses me with what he can remember. He sometimes remember things I’ve forgotten.
The brain is a fascinating masterpiece. It holds a treasure trove of precious memories, and losing memory is devastating. I write my thoughts so I don’t forget.